Saturday, January 28, 2012

Take a Moment

Please take a moment to get to know my friend Kristy. She lives in Texas and is a teacher. She has two exceptional daughters, Juliana and Olivia. Her oldest daughter Juliana has Rett syndrome. Rett is a progressive, neurodevelopmental disorder. Rett is a cruel disease that has robbed Juliana of her mobility and her ability to speak. She is literally trapped in a body that does not work. Although Juliana continues to make amazing strides every single day, every one of those days is a struggle. A struggle that no person, especially a child, should ever have to endure.

Kristy and her family are very involved with the organization Girl Power 2 Cure a non-profit organization dedicated to raising awareness, funds for treatments and a cure for Rett Syndrome. A cure is possible. The research is promising and new therapies are on the horizon. Kristy and her husband (and their "dream team") work tirelessly to raise awareness about Rett and to raise money for the organization so essential to families living with Rett.

It's a cause that Kristy believes in so much that she's putting her legs on the line and running a half-marathon. For her daughter. For the thousands of girls just like her. Please support her. Every penny she raises goes to Girl Power and the fight to beat Rett. Make a donation, or leave a word of support, or just spread the word. Juliana deserves a voice. And a fighting chance.

1 comment:

Kristy said...

Wow! Just catching up on your blog! Thanks so much for the plug. I will be there in 2 weeks!!!!!